The Libellas Foundation is a nonprofit patient advocacy organization dedicated to improving the lives of those who live with NALCN-related diseases.

We understand that your choice to support the LIBELLAS FOUNDATION may be a deeply personal one and that each donation is a statement of your trust in our Board and Scientific Advisory Committee. We take that trust seriously. We adhere to the following values in all our activities.


We are committed to advancing the research on NALCN-related diseases. We believe it offers the best way towards hope for families affected by severe disorders related to NALCN dysfunction.


We act responsibly with the funds entrusted to our care, and we apply the highest ethical standards to our actions, including our dealings with the researchers whose work we support or may support. The statutes of Libellas Foundation note that members of the patronate will not receive any monetary compensation for the exercise of its functions.


We believe in being answerable to our stakeholders. This includes transparency, regular progress reporting, and maintaining proper accounting practices and controls.

“So many of our dreams at first seem imposible, then, they seem improbable, and then, when we summon the will, they soon become inevitable”.

Christopher Reeve