JOIN IN ON THE ACTION! RARE DISEASE DAY

February 28, 2021

Rare disease day takes place on the last day of February each year. 
The main objective of Rare Disease Day is to raise awareness among the general public and decision-makers about rare diseases and their impact on patient’s lives.

Get involved today and help make an impact!


The campaign targets primarily the general public and also seeks to raise awareness among public authorities, industry representatives, policy-makers researchers, health professionals, and anyone who has an interest in rare diseases

Fundación Libellas has made a special video to show the whole world that rare diseases and ultra-rare diseases are everywhere. The best way to raise awareness is for each of us to come together and spread the word. #careaboutrare


Let’s bring awareness about Rare Diseases and Ultra Rare CLIFAHDD and IHPRF syndromes!!


Download the file at this link.
https://we.tl/t-jn0bSk4jKd

You can also share it from our Facebook page Fundación Libellas, Twitter, or Instagram. https://fb.watch/3QSODbS_Hu/

Or you can see and share it here!

NALCN-RELATED SYNDROMES

Show us how you are celebrating World Rare DiseaseDay on social media. Share this video on Facebook, Twitter, and Instagram.

Tag us @Fundacionlibellas and make sure to use the hashtags #RareDiseaseDay  #CareAboutRARE #GeneNALCNandUNC80  #RareEpilepsies, for a chance to be highlighted on social media channels. 

We include the special logo that the Rare Epilepsy Network has made for us.

You may use The official Rare Disease Day 2021 video. It is already available in 36 languages, kicking off the international patient-led movement that puts rare diseases in the spotlight.
https://www.rarediseaseday.org/
 Visit the world map to find your country and Be part of the global community!
You may share this video on Facebook and Twitter using the hashtag #RareDiseaseDay to raise awareness for people living with a rare disease.