Rare diseases and rare epilepsies collaborating! As part of REN, we look forward to learning from and sharing our knowledge with a whole patient engagement community. https://www.rareepilepsynetwork.org/ By joining forces,…
Spanish to english Google translate POSTED ON JANUARY 11, 2021 GENOTIPIA Angel Aledo Serrano, Antonio Gil-Nagel Rein Neurology Service, Hospital Ruber Internacional. MADRID Researchers from a French-Spanish consortium, together with the…
By Hub de salud https://hubdesalud.es/programas/iguales%20y%20diferentes/ Diciembre 8, 2020. Isabel es una de las pocas niñas en el mundo que tiene el Síndrome de CLIFAHDD. Su patología es tan rara que…