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  • HOME
  • WHO WE ARE
    • Patronate
    • Research Committee
    • Family Advisory Council
    • Our kids. Our inspiration.
    • Values
    • Foundation Information
  • WHAT WE DO
    • Goals
    • NALCN Suppport to Research Projects
    • NALCN News/Blog
    • FAQs
  • NALCN
    • Ultra Rare Diseases
    • NALCN-related Syndromes: CLIFAHDD and IHPRF1&2
    • NALCN Research Articles
    • Phenotype study
    • Main Symptoms
  • CONTACT
    • Contact us
    • Newsletters
  • DONATE
  • English
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NALCN News/Blog

JOIN IN ON THE ACTION! RARE DISEASE DAY

  • Post published:February 28, 2021

February 28, 2021 Rare disease day takes place on the last day of February each year. The main objective of Rare Disease Day is to raise awareness among the general public and decision-makers about rare diseases…

Continue ReadingJOIN IN ON THE ACTION! RARE DISEASE DAY

Fundación Libellas is a Proud REN and EURORDIS member!

  • Post published:January 18, 2021

Rare diseases and rare epilepsies collaborating! As part of REN, we look forward to learning from and sharing our knowledge with a whole patient engagement community. https://www.rareepilepsynetwork.org/ By joining forces,…

Continue ReadingFundación Libellas is a Proud REN and EURORDIS member!

An unexplored sodium channel and its implication in rare and not so rare diseases

  • Post published:January 17, 2021

Spanish to english Google translate POSTED ON JANUARY 11, 2021 GENOTIPIA Angel Aledo Serrano, Antonio Gil-Nagel Rein Neurology Service, Hospital Ruber Internacional. MADRID Researchers from a French-Spanish consortium, together with the…

Continue ReadingAn unexplored sodium channel and its implication in rare and not so rare diseases
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Recent Posts

  • RECURRING DONATION
  • FUNDACIÓN LIBELLAS IS CLOSELY ASSOCIATED TO THE “RESTORELEAK CONSORTIUM”.
  • This molecule is vital to our survival. Now we Know what it looks like.
  • ERA-NET NEURON JTC2021: RestoreLeak
  • The RestoreLeak Consortium obtain a dedicated 3-year funding from the European Union through the 2021 call of the ERA-NET NEURON program on “Neurodevelopmental Disorders” .

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