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  • HOME
  • WHO WE ARE
    • Patronate
    • Research Committee
    • Family Advisory Council
    • Our kids. Our inspiration.
    • Values
    • Foundation Information
  • WHAT WE DO
    • Goals
    • NALCN Suppport to Research Projects
    • NALCN News/Blog
    • FAQs
  • NALCN
    • Ultra Rare Diseases
    • NALCN-related Syndromes: CLIFAHDD and IHPRF1&2
    • NALCN Research Articles
    • Phenotype study
    • Main Symptoms
  • CONTACT
    • Contact us
    • Newsletters
  • DONATE
  • English
  • Español

NALCN News/Blog

Entrevista Isabel Pastor, presidenta y fundadora de Fundación Libellas sobre enfermedades ultra raras.

  • Post published:May 2, 2021

28 Abril 2021 · Discapnet Isabel Pastor es la presidenta y fundadora de la Fundación Libellas entidad dedicada a apoyar la investigación y dar visibilidad a tres enfermedades ultra raras asociadas…

Continue ReadingEntrevista Isabel Pastor, presidenta y fundadora de Fundación Libellas sobre enfermedades ultra raras.

FUNDACION LIBELLAS CON ANTONIO G. ARMAS. Programa de Radio “Enfermedades Raras”

  • Post published:April 20, 2021

Fundación Libellas. Libertad FM. Programa de radio "Enfermedades Raras" con Antonio G. Armas. 18 Febrero 2021. Programa nº 282. CLIFAHDD CANALOPATÍA ATÍPICA El programa de radio ‘Enfermedades Raras’ del 18…

Continue ReadingFUNDACION LIBELLAS CON ANTONIO G. ARMAS. Programa de Radio “Enfermedades Raras”

NALCN – UNC80 Research advances CLIFAHDD and IHPRF Syndrome

  • Post published:March 9, 2021

Fundación Libellas. September 2020. Newsletter. https:fundacionlibellas.org Our understanding of the NALCN protein complex responsible for the CLIFAHDD and IHPRF1&2 syndromes has reached new milestones over the last months. Two recent…

Continue ReadingNALCN – UNC80 Research advances CLIFAHDD and IHPRF Syndrome
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Recent Posts

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  • The RestoreLeak Consortium obtain a dedicated 3-year funding from the European Union through the 2021 call of the ERA-NET NEURON program on “Neurodevelopmental Disorders” .

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