Libellas international Foundation is a nonprofit patient advocacy organization dedicated to improving the lives of children affected by NALCN ion channel-related diseases, trough research and family support programs and education.
We aim to create a community of patients, clinicians and researchers who work together to transform the lives of those living with NALCN-related diseases.
To raise awareness among physicians, scientists, and the general public
To support relevant research projects through an international grant research program
To provide a caring and educational community for affected families
To hosting a unique information resource
"Anyone diagnosed with a NALCN linked channelopathy is encouraged to contact the NALCN Channelopaty International Libellas Foundation"