Rare diseases and rare epilepsies collaborating!
As part of REN, we look forward to learning from and sharing our knowledge with a whole patient engagement community.
By joining forces, we are sure we will be able to achieve our individual and common goals, which are the improvement of regulatory policies and frameworks and the development of novel research programs and therapies.
The Rare Epilepsy Network (REN) is a partnership between rare epilepsy organizations, the Epilepsy Foundation, Columbia University, and Research Triangle International to conduct research to improve outcomes of rare conditions associated with epilepsy and seizures.
The mission of Rare Epilepsy Network (REN) is to work with urgency to collaboratively improve outcomes of rare epilepsy patients and families by fostering patient-focused research and advocacy.
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FUNDACIÓN LIBELLAS is also a proud new member of EURORDIS
EURORDIS-Rare Diseases Europe is a unique, non-profit alliance of 949 rare disease patient organisations from 73 countries that work together to improve the lives of the 30 million people living with a rare disease in Europe.
EURORDIS is a non-governmental patient-driven alliance of patient organisations and individuals active in the field of rare diseases in Europe and beyond
EURORDIS mission is to build a strong pan-European community of patient organisations and people living with rare diseases, to be their voice at the European level.
GET TO KNOW FUNDACIÓN LIBELLAS IN EURORDIS