TOGETHER WE ARE STRONGER, OUR VOICES LOUDER, AND THE SYNERGY OF OUR ACTIONS MORE POWERFUL.
FUNDACION LIBELLAS is powered by families, all around the world, united in our mission to raise awareness and accelerate research to find a cure.
This Familiy Advisory Council serves in a voluntary role to advises our Patronate and our Research Committe from a parent/family perspective on the NALCN Conditions: CLIFAHDD and IHPRF (Type 1 and 2) Sindromes. (NALCN/UNC80 genes)

COLETTE JESSUP
ENGLAND

JANE GRIFFITHS
AUSTRALIA

ALYSIA LYNN
EEUU

ALISON NICOLSON
SCOTLAND

PATRICIA CAMPBELL
EEUU

SARAH SULLIVAN
EEUU

EVA KARBAUMER
GERMANY











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